At one time, it was believed that celiac disease in children could be outgrown. We now know that celiac disease is a common genetic disorder that affects men, women and children of all ages and races. And, unfortunately, it cannot be outgrown.

What is celiac disease?

Celiac disease is an autoimmune disease, meaning that the immune system responds inappropriately to substances or tissues normally present in the body. For people with celiac disease, the body cannot tolerate gluten, a protein found in wheat, rye and barley. Not only can the disease cause discomfort for the child with celiac disease, but it also damages the small intestine and inhibits the absorption of nutrients from food.

What happens when someone with celiac eats gluten?

When children with celiac disease eat food that contains gluten, the immune system damages the small intestine’s villi, which are tiny fingerlike hairs that help to absorb nutrients from food. Without healthy villi, a child can become malnourished. If a child is left undiagnosed, damage can occur in nearly every system of the body, from skeletal to neurological.

What are the symptoms of celiac disase?

The symptoms of celiac disease vary. Originally, researchers thought that gastrointestinal complications were the only symptom; however, because this disorder has now been found to affect the entire body, there is a wide range of symptoms.

Gastrointestinal symptoms of celiac:

  • Diarrhea
  • Lactose Intolerance
  • Abdominal Distention
  • Change in appetite
  • Colitis – can have blood in the stool
  • Constipation
  • Dyspepsia – “stomach aches”
  • Bacterial overgrowth
  • Malabsorption
  • Flatulence

Dermatologic and mucous membrane symptoms

  • Dermatitis Herpetiformis
  • Eczema
  • Psoriasis
  • Vitiligo
  • Acne
  • Rosacea
  • Urticaria – hives
  • Vasculitis – inflammation of blood vessels

Behavioral/psychiatric symptoms

  • Depression
  • ADD/ADHD/Autism Spectrum Disorder (although no studies have shown a definitive link between celiac disease and ADD/ADHD/autism, many families feel their children have improved on a gluten-free diet)
  • Hypochondria
  • Inability to concentrate, “brain fog”
  • Anxiety
  • Neurosis
  • Moodiness
  • OCD – Obsessive-Compulsive Disorder

These are just a few examples of symptoms experienced by those who suffer from celiac disease. Children with celiac disease often have other autoimmune diseases too, such as:

  • Type 1 Diabetes (juvenile onset)
  • Hypothyroidism (Hashimoto’s Disease)
  • Hyperthyroidism (Grave’s Disease)
  • Secondary Hyperparathyroidism
  • Sjogren’s Syndrome – dry eyes and mouth
  • Addison’s Disease – atrophy of adrenal glands
  • Autoimmune Liver Disease
  • Dilated (congestive) Cardiomyopathy – inflammation of heart muscle
  • Alopecia Areata – patchy hair loss
  • Rheumatoid Arthritis

How is celiac disease diagnosed?

Celiac disease is first diagnosed through a blood test. The blood test is looking for high levels of antibodies, since the bodies of individuals with celiac disease attack gluten protein as a foreign substance. If the results of the test are unclear, the child would have to undergo an endoscopy, where a small biopsy of the small intestine is done to determine if celiac disease is present.

What is the treatment for celiac disease?

So, how is celiac disease treated?

The good news about this genetic disease is that it’s manageable. With a 100 percent gluten-free diet, the intestinal villi will completely heal.

However, there is a lot to learn when a child goes gluten-free. Gluten protein is in breads, but it’s also found in Teriyaki sauce, ground spices, lipstick, flavored yogurt, etc.

But a gluten-free diet does not need to be difficult, as fruits, vegetables, meat, poultry and milk are all naturally gluten-free.

Sign-up for Children’s National’s Celiac Disease Digest for up-to-date information and gluten-free recipes for the whole family. 

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