Epilepsy affects more children than many people realize, with approximately 1% of the population living with the condition at any given time. As a parent or caregiver, supporting your child with epilepsy as they build and maintain friendships is essential to their emotional well-being. While epilepsy can bring uncertainties and challenges, there are positive steps you can take to help your child experience meaningful connections with their peers.

Fostering understanding and open communication

Encourage open conversations about epilepsy between your child and their friends. Age-appropriate discussions can dispel myths and reduce stigma. Consider sharing simple explanations of what a seizure is and what friends can do if one occurs. This helps children feel more comfortable and less fearful, empowering them to respond appropriately.

How can I help build my child’s confidence in social settings?

Help your child practice how to explain their condition to others, which can boost self-esteem. Role-playing common scenarios at home gives them confidence to answer questions or correct misunderstandings. Remind your child that epilepsy does not define who they are and encourage them to share their interests and hobbies with friends.

Educating friends and families

Reach out to parents of your child’s friends to provide information about epilepsy, particularly if your child spends time at their homes. Share signs to watch for, basic first aid steps, and reassurance that most seizures are brief and manageable. This proactive approach can foster stronger support networks for your child.

What are some ways I can ensure my child with epilepsy is included in activities?

Work with teachers, coaches and group leaders to ensure your child is included in social, recreational and school activities. Discuss any needed accommodations, such as supervision during swimming or adjustments for fatigue. Inclusion helps children feel valued and builds friendships naturally.

What’s the best way to equip my child to handle uncertainty and anxiety that often accompany epilepsy?

Epilepsy can bring unpredictability, especially regarding seizure occurrence. Encourage your child to share their feelings about uncertainty with you or a trusted adult. Consider connecting with support groups where children can meet peers who understand their experiences, and where parents can share advice and encouragement.

Encouraging kindness and empathy

Remind your child and their friends that everyone faces challenges—epilepsy is just one of many. Practicing kindness and empathy helps children learn to support each other and builds deeper, more lasting friendships.

Where can I find more support?

Parents and caregivers can find additional information and resources in several places, including:

• Epilepsy Foundation. You’ll find information, support groups and resources for families.
• Local hospital or neurology clinic. Ask about educational materials or community programs.
• School counselors and nurses. These trusted adults can help facilitate understanding and support within the school environment.

By taking these steps, you can help your child navigate friendships with confidence and resilience. Remember, with guidance and understanding, children with epilepsy can enjoy meaningful, supportive relationships that enrich their lives.